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<div style="float: left; margin: 0.5em 0.9em 0.4em 0em;">[[File:Fig4 Pratt JforElecHthDataMeth2019 7-1.png|240px]]</div>
<div style="float: left; margin: 0.5em 0.9em 0.4em 0em;">[[File:Fig1 Scroggie DigDisc2023 2.gif|240px]]</div>
'''"[[Journal:Implementing a novel quality improvement-based approach to data quality monitoring and enhancement in a multipurpose clinical registry|Implementing a novel quality improvement-based approach to data quality monitoring and enhancement in a multipurpose clinical registry]]"'''
'''"[[Journal:GitHub as an open electronic laboratory notebook for real-time sharing of knowledge and collaboration|GitHub as an open electronic laboratory notebook for real-time sharing of knowledge and collaboration]]"'''


There is growing interest in the potential for clinical registries that can simultaneously support clinical care, quality improvement (QI), and [[research]]. This multi-purpose model is consistent with the Institute of Medicine’s (IOM’s) vision of a learning health system which “draws research closer to clinical practice by building knowledge development and application into each stage of the health care delivery process.” Gliklich ''et al.'' define a registry as “an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes.” Most pediatric chronic illnesses meet the [[National Institutes of Health]]'s (NIH) definition for rare disease, and as such, multi-center registries are especially important to study and improve care for children with chronic diseases. ('''[[Journal:Implementing a novel quality improvement-based approach to data quality monitoring and enhancement in a multipurpose clinical registry|Full article...]]''')<br />
[[Electronic laboratory notebook]]s (ELNs) have expanded the utility of the paper [[laboratory notebook]] beyond that of a simple record keeping tool. Open ELNs offer additional benefits to the scientific community, including increased transparency, reproducibility, and [[Data integrity|integrity]]. A key element underpinning these benefits is facile and expedient knowledge sharing which aids communication and collaboration. In previous projects, we have used [[LabTrove]] and [[LabArchives, LLC|LabArchives]] as open ELNs, in partnership with GitHub (an open-source web-based platform originally developed for collaborative coding) for communication and discussion. Here we present our personal experiences using GitHub as the central platform for many aspects of the scientific process ... ('''[[Journal:GitHub as an open electronic laboratory notebook for real-time sharing of knowledge and collaboration|Full article...]]''')<br />
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Latest revision as of 16:20, 26 March 2024

Fig1 Scroggie DigDisc2023 2.gif

"GitHub as an open electronic laboratory notebook for real-time sharing of knowledge and collaboration"

Electronic laboratory notebooks (ELNs) have expanded the utility of the paper laboratory notebook beyond that of a simple record keeping tool. Open ELNs offer additional benefits to the scientific community, including increased transparency, reproducibility, and integrity. A key element underpinning these benefits is facile and expedient knowledge sharing which aids communication and collaboration. In previous projects, we have used LabTrove and LabArchives as open ELNs, in partnership with GitHub (an open-source web-based platform originally developed for collaborative coding) for communication and discussion. Here we present our personal experiences using GitHub as the central platform for many aspects of the scientific process ... (Full article...)
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