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<div style="float: left; margin: 0.5em 0.9em 0.4em 0em;">[[File:Fig2 Rubel FInNeuroinformatics2016 10.jpg|240px]]</div>
'''"[[Journal:The effect of the General Data Protection Regulation on medical research|The effect of the General Data Protection Regulation on medical research]]"'''
'''"[[Journal:Methods for specifying scientific data standards and modeling relationships with applications to neuroscience|Methods for specifying scientific data standards and modeling relationships with applications to neuroscience]]"'''


Neuroscience continues to experience a tremendous growth in data; in terms of the volume and variety of data, the velocity at which data is acquired, and in turn the veracity of data. These challenges are a serious impediment to sharing of data, analyses, and tools within and across labs. Here, we introduce BRAINformat, a novel data standardization framework for the design and management of scientific data formats. The BRAINformat library defines application-independent design concepts and modules that together create a general framework for standardization of scientific data. We describe the formal specification of scientific data standards, which facilitates sharing and verification of data and formats. We introduce the concept of "managed objects," enabling semantic components of data formats to be specified as self-contained units, supporting modular and reusable design of data format components and file storage. We also introduce the novel concept of "relationship attributes" for modeling and use of semantic relationships between data objects. Based on these concepts we demonstrate the application of our framework to design and implement a standard format for electrophysiology data and show how data standardization and relationship-modeling facilitate [[data analysis]] and sharing. ('''[[Journal:Methods for specifying scientific data standards and modeling relationships with applications to neuroscience|Full article...]]''')<br />
The enactment of the General Data Protection Regulation (GDPR) will impact on European data science. Particular concerns relating to consent requirements that would severely restrict medical data research have been raised. Our objective is to explain the changes in data protection laws that apply to medical research and to discuss their potential impact ... The GDPR makes the classification of pseudonymised data as personal data clearer, although it has not been entirely resolved. Biomedical research on personal data where consent has not been obtained must be of substantial public interest. [We conclude] [t]he GDPR introduces protections for data subjects that aim for consistency across the E.U. The proposed changes will make little impact on biomedical data research. ('''[[Journal:The effect of the General Data Protection Regulation on medical research|Full article...]]''')<br />
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Revision as of 15:08, 25 April 2017

"The effect of the General Data Protection Regulation on medical research"

The enactment of the General Data Protection Regulation (GDPR) will impact on European data science. Particular concerns relating to consent requirements that would severely restrict medical data research have been raised. Our objective is to explain the changes in data protection laws that apply to medical research and to discuss their potential impact ... The GDPR makes the classification of pseudonymised data as personal data clearer, although it has not been entirely resolved. Biomedical research on personal data where consent has not been obtained must be of substantial public interest. [We conclude] [t]he GDPR introduces protections for data subjects that aim for consistency across the E.U. The proposed changes will make little impact on biomedical data research. (Full article...)

Recently featured:

Methods for specifying scientific data standards and modeling relationships with applications to neuroscience
Data and metadata brokering – Theory and practice from the BCube Project
A metadata-driven approach to data repository design