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<div style="float: left; margin: 0.5em 0.9em 0.4em 0em;">[[File:Fig1 Khare eGEMs2019 7-1.png|240px]]</div>
<div style="float: left; margin: 0.5em 0.9em 0.4em 0em;">[[File:Fig1 Tomich Sustain23 15-8.png|260px]]</div>
'''"[[Journal:Design and refinement of a data quality assessment workflow for a large pediatric research network|Design and refinement of a data quality assessment workflow for a large pediatric research network]]"'''
'''"[[Journal:Why do we need food systems informatics? Introduction to this special collection on smart and connected regional food systems|Why do we need food systems informatics? Introduction to this special collection on smart and connected regional food systems]]"'''


Clinical data research networks (CDRNs) aggregate [[electronic health record]] (EHR) data from multiple hospitals to enable large-scale research. A critical operation toward building a CDRN is conducting continual evaluations to optimize [[wikipedia:Data quality|data quality]]. The key challenges include determining the assessment coverage on big datasets, handling data variability over time, and facilitating communication with data teams. This study presents the evolution of a systematic workflow for data quality assessment in CDRNs.
Public interest in where food comes from and how it is produced, processed, and distributed has increased over the last few decades, with even greater focus emerging during the [[COVID-19]] [[pandemic]]. Mounting evidence and experience point to disturbing weaknesses in our food systems’ abilities to support human livelihoods and wellbeing, and alarming long-term trends regarding both the environmental footprint of food systems and mounting vulnerabilities to shocks and stressors. How can we tackle the “wicked problems” embedded in a food system? More specifically, how can convergent research programs be designed and resulting knowledge implemented to increase inclusion, sustainability, and resilience within these complex systems ... ('''[[Journal:Why do we need food systems informatics? Introduction to this special collection on smart and connected regional food systems|Full article...]]''')<br />
 
Using a specific CDRN as a use case, a workflow was iteratively developed and packaged into a toolkit. The resultant toolkit comprises 685 data quality checks to identify any data quality issues, procedures to reconciliate with a history of known issues, and a contemporary GitHub-based reporting mechanism for organized tracking.
 
During the first two years of network development, the toolkit assisted in discovering over 800 data characteristics and resolving over 1400 programming errors. Longitudinal analysis indicated that the variability in time to resolution (15day mean, 24day IQR) is due to the underlying cause of the issue, perceived importance of the domain, and the complexity of assessment. ('''[[Journal:Design and refinement of a data quality assessment workflow for a large pediatric research network|Full article...]]''')<br />
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Latest revision as of 17:11, 22 April 2024

Fig1 Tomich Sustain23 15-8.png

"Why do we need food systems informatics? Introduction to this special collection on smart and connected regional food systems"

Public interest in where food comes from and how it is produced, processed, and distributed has increased over the last few decades, with even greater focus emerging during the COVID-19 pandemic. Mounting evidence and experience point to disturbing weaknesses in our food systems’ abilities to support human livelihoods and wellbeing, and alarming long-term trends regarding both the environmental footprint of food systems and mounting vulnerabilities to shocks and stressors. How can we tackle the “wicked problems” embedded in a food system? More specifically, how can convergent research programs be designed and resulting knowledge implemented to increase inclusion, sustainability, and resilience within these complex systems ... (Full article...)
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